Virtual Rare Disease Day 2021 UK-wide Parliamentary Event

10.00 – 12.00 via Zoom
Sign up here: http://eepurl.com/ho7qA5

Plans for this year’s Rare Disease Day activities are well underway albeit a little different to usual.

Our annual event will be a joint parliamentary event with the other nations of the UK and will focus on the implementation of the new UK Rare Diseases Framework that was published last month: https://www.gov.uk/government/publications/uk-rare-diseases-framework

Speakers will include Health Ministers and policy makers from across the UK, parliamentarians and patients and carers affected by rare and genetic conditions. You can join for the whole event or specifically for the Welsh section which will take place from 11.00 – 11.30am.

Please do share the invitation with others who may have an interest in attending.

For more information, you can also contact the Genetic Alliance UK Policy & Engagement Manager (Wales), Emma Hughes – emma@geneticalliance.org.uk.